MYH4D Community of practice

The CoP is virtual place for targets to develop peer learning processes better handling amount of knowledge on dementia as a group than a single person. Participants share vision, concerns and could lead easily process of decision-making. It is a space for publishing story telling, debates (Wenger E., 2011). It is local (translate in partners native tongue), but also worldwide connected, accessible and open (translate in English).

In this project we define communities of practices as the places where citizens, caregivers, policy-makers, universities, enterpresises and civil society can join forces with people with dementia and their cargivers to create sustainable environments and promote active citizinship according to the quintuple helix model (Source: Casaramona, A., Sapia, A., & Soraci, A. (2015). How TOI and the quadruple and quintuple helix innovation system can support the development of a new model of international cooperation. Journal of the Knowledge Economy, 6(3), 505-521), that means to include five perspectives:

  1. university,
  2. industry,
  3. government,
  4. media-based, culture-based public and ‘civil society’,
  5. natural environments as “Eco-innovation” and “eco-entrepreneurship”.

MYH4D CoP is organized to allow the person with dementia, their care givers and the adult teachers to share needs, knowledge, experiences and to scaling up good practices and innovative approaches and to create and opportunity to match needs and solutions and discussion opportunities at any level. The CoP goal is to develop personally and professionally learning (for adult educators) from each others about living with dementia both as person with dementia and as member of the community. The CoP allow to minimize distances barriers and cultural gap, because it will be virtual and open.

Specifically MYH4D targets populations are:

  1. adult and senior teachers and educators. Each target population will use the CoP to profile their needs and competences and to match them;
  2. for person who lives with dementia or caregiver who lives with person with dementia.

The innovative elements of MYH4D CoPs are the online platform to support two Community of Practices where each taget could share knowledge, skills, competences, good practices, methods, already existing tools and also new developped tools as Assistive Technology Initiatives (ATI) to create a virtual meeting place to contribute to a whole inclusive society focused on dementia.

The final intellectual output is desined as a CoP with two areas:

  1. CoP Area 1 - Teachers and adult/senior educators CoP realization.
  2. CoP Area 2 - People with dementia and caregivers.

in terms of language (native) and usability. We need to do research about the language we use on this platform. Formal versus informal, local versus international, etc... But also the reach of the online platform. We want to experiment with local Communities of Practice but also international a international Community of Practice.

Checking the accessibility of the online platform it will be provide a training to use the online platform: a kind of manual/instruction userfriendly to use the online platform and the Community of Practice. Indicators/Topic of the manual:

  1. the creation of a manual ‘How to use the online platform’.
  2. The creation of a manual ‘How to be part of a community of practice’
  3. Evaluation by the users of the platform about usability and accessibility

Each CoP is designed with three sessions, each session will focused on a different topic. Topics could be change by refrence partners:

Area 1. MYH4D CoP of adult/senior educators who teach to community included person with dementia or to family caregivers.

Scientific partners references:

  • OCMW (BE)
  • ZDUS (SI)

Technical partners:

  • ICT partner: UP (GR)
  • EDA methods partner: Emphasys (CY)
  • Quality methods and ethics partner: Instituto de Etica Clinica (ES)

1. Topic: Communication competence to person with dementia and family caregivers.

1.1 Session: Glossary to verbally and un-verbally communicate to person with dementia and family caregivers. In the case of person with dementia calm tone of voice or wide and emphatic gestures to bolster verbal communication contents are explained (T. Kitwood, Framework for quality of life 2016).

2. Topic: Problem solving skills to solve learning barriers of community included people with dementia and family caregivers.

1.2. Session: Case studies to focus learning barriers and solutions on motivational, emotional, relational barriers. The brain performance depends on how it is synchronized and interconnected. Right hemisphere is specialized in emotion and left hemisphere is connected to language and critical thinking. Persons with dementia could have difficulties on recruit and coordinate the designed areas on duty. Adult education applied to dementia has to take into account neuroscience to better match education goals and target needs.

3. Topic: Knowledge about protective factors to adult learning process included people with dementia

1.3. Session: Tools of practical cases focus on how improving protective factors as physical activities, nutritions, sociality in educational settings.

Area 2. MYH4D CoP of people who live with dementia and family caregivers

Scientific partners references:

  • ASL TO3 (IT)
  • FCA (BG)

Technical partners:

  • ICT partner: UP (GR)
  • EDA methods partner: Emphasys (CY)
  • Quality methods and ethics partner: Instituto de Etica Clinica (ES)

MYH4D CoP target to people who live with dementia or caregivers is a virtual space realized developing story telling, experience sharing space, sharing the best practices, discussing some difficulties with specific problems, improving demand-offer space for promoting the autonomy of the person with dementia and of his/her family and care givers. The CoP referred to person with dementia and caregivers is developed with a focus on advocacy and experience-oriented advice of the PwD and their caregivers. Essential elements and content needed to targets will be proposed by them in the pahse of the design of the online platform.

Once the platform is created PwD and their caregivers evaluate the online platform and learning method ‘Community of Practice’.

Consulting the PwD concerning how dementia friendly the online platform is. Here we focus on accessibility, usability, readability, use of pictures versus words, use of colours, use contrast, etc...

1. Topic: Soft skills of persons who live with dementia/family caregivers.

2.1. Session: Neurostymolation, including gamification for people with dementia and caregivers. Gamification is a tool to cognitive neurostymolation to improve lack of memory, lack of wording, orienteering, timing and also to implement family caregivers knowledge and empathy about how means living with dementia.

2. Topic: Information on Assistive Technology Initiatives (ATI) and sharing board of ATI for person with dementia

2.2. Session: Board to list ATI/personal devices as facilitated agenda, family GPS, GPS shoes, sensor pressures carpets. Daily private and social tasks could be stressors for person with dementia and their caregivers. Knowing and sharing ATI is a proposal to better coping daily.

3. Topic: Information about inclusive community focused on dementia facilities.

2.3. Session: List of facilities inside community focused on dementia as “toilet map” to incontinent needs, “restaurant/cafeteria friendly” with ergonomic issues (quite rooms, no mirror, no dark colors).